Living with Down syndrome
By Joey Kane
One special thing about me is that I have Down syndrome. Down syndrome means having an extra chromosome in my body. It’s the way I was born. My parents told me that when I was born on Aug. 9, 1995, the doctor looked at my hands and eyes and confirmed that I had Down syndrome. This was not a surprise to my mom and dad because they knew I was going to have Down syndrome. That’s because of a test that had been done before I was born.
Having Down syndrome is the same as having a disability. My teacher, Mr. Beall, talks about people having disabilities. He says that it does not matter if you have a learning difference because everyone should be treated the same. Other people think and say I have a disability, but I don’t really think of myself as having a disability because I feel I fit in with other people. You should not think that you can get away with stuff just because you have a disability. If you are late to class, you should get detention just like everyone else does.
I have Down syndrome because I think that God wanted me to have it. I didn’t decide I wanted to have it. Some people think that because I have Down syndrome I can’t do what other people can do. But that is not true. Everyone can share their talents, even if they have Down syndrome. My theme song is “Anything You Can Do (I Can Do Better).”
One of the things that makes me different is that I have more trouble at school than other people. It is hard for me to take notes in class. It is hard for me to see the board because I have bad vision. I need more time to take a test because it takes me a long time to read the questions. The small print on tests also causes problems for me. Other things are also hard. It’s hard for me to remember my classmates’ names. It’s hard for me to find the right metro bus to get on. I won’t be able to get a driver’s license because my vision is not good enough to drive.
Some people say that those with Down syndrome don’t have good eye-hand coordination. But when I play X-Box I probably surprise people because I do have good eye-hand coordination.
Some people may think that I would be treated badly because I have Down syndrome. My experience has not been this way. God tells everyone to treat people equally, and I think that most people act in this way. I don’t feel as if people make fun of me or make me feel bad just because I have Down syndrome.
I can do things that other people can do even though I have a disability. I can swim, play basketball, play Ping-Pong, be good at math and give hugs to people. I can go to college, but I need to qualify for accommodations because of my learning disability. I am awesome at prayer because I love people and I know God loves me. I like sports like football, basketball, baseball and soccer. I love the Notre Dame Fighting Irish, the Gonzaga Bulldogs, the Washington Huskies, the Seahawks and the Mariners.
I can work just like other people. Last summer I worked for the Mariners. My job was handing out items at baseball games. I handed out things like bobble-head dolls, posters, backpacks, trading cards and T-shirts. I got paid minimum wage: $9.04 an hour, plus I got half-price food. Because I did such a great job, my boss asked me to come back for the 2013 season.
Another job I had was working at Mount St. Vincent’s. This is a nursing home where I would talk to people, help them get to places and bring trays of food to them. I also cleared off tables. This job gave me a good chance to make friends and do service. I think service is what God wants me to do, along with following the commandments.
Also, I had a job watering my neighbors’ plants for the whole summer. Twice a week I had to water plants and flowers so that they would not die. I got paid $5 each time. Someday, I will have a job where I work almost every day. I hope it is for the Mariners. I would like to do something where I am with the team. That way I would get to meet the players.
I might be a teacher someday. I would like to teach little kids because they are cute. I would want to teach math. I don’t think that having Down syndrome would be a problem in doing this.
Another way I am the same as other people is that I like food. Maybe I like food more than most other people. I really like pizza, pasta, gold fish, hot dogs, ramen, french fries, hamburgers and milkshakes. If I were a babysitter, I would probably order pizza for the kids and myself.
People can look at me and know that I have Down syndrome. But they don’t see me as having Down syndrome. They see me as myself. I can recognize people with Down syndrome. Mostly it is the shape of their face and how they walk. When I look in the mirror I don’t see myself as having Down syndrome.
God loves me because God made me. He made me just the way I am, and he loves me just the way I am. Because I have a good sense of humor, people feel more comfortable around me. Sometimes someone in my class says that he feels embarrassed to be around me. On the other hand, this same person asked me to sit at his table. This is a good example of the way it should be. I should be treated as if I don’t have Down syndrome. In fact, I do not even think of Down syndrome as being a disability, but many people think it is.This is the first time I’ve really talked about having Down syndrome. I don’t tell people because I guess I think people know I’m a good guy even though I have Down syndrome. Not to be cocky, but I’m a popular guy.
Joey Kane is a senior at John F. Kennedy Catholic High School in Burien. Reprinted with permission. This article originally appeared in the July 3, 2013, edition of America magazine. Read his brother's essay which appeared in the April 2014 issue of Northwest Catholic.